10/8/2005 12:00:00 AM
9/29/2005 12:00:00 AM
9/18/2005 12:00:00 AM
9/3/2005 12:00:00 AM
8/30/2005 12:00:00 AM
8/13/2005 12:00:00 AM
7/26/2005 12:00:00 AM
7/26/2005 12:00:00 AM
7/8/2005 12:00:00 AM
7/3/2005 12:00:00 AM
Doctors appointment tomorrow
Tomorrow we go in to the new doctor. We should get some additional photos as well as a lot more information. Carol doesnt want to be told the details of the situation as it just adds to the stress.
I will find out as much as I can from the doctor and post it here. It is important that I get information about Kennedy's size first of all and progress. It is important that Kennedy hasn't fallen any further behind in development. She is still kicking and we can certainly hear her heartbeat.
It is hard to admit I hope I go in there and we find some mistake with the earlier diagnosis. Her hands arent clenched, the amnio was wrong, or anything that is just a little better. But alas I am sure that the news will be more of the same. I really hope it isnt more bad news. I can live with what I have now, but take something else away and I will be hard pressed to deal with it.
Carol is another story. Right now she is having a hard time dealing with what we were dealt. It is a daily reminder to her. It isnt that I ignore it and she doesnt it is just that Kennedy is IN her. As I write this I can see her hand move to her tummy in response to a kick from our child.
Well stay tuned for more information tomorrow.
6/30/2005 8:53:01 PM
6/30/2005 12:00:00 AM
6/22/2005 12:00:00 AM
Drs. Appt. today
We went in o Dr. Saretsky today and he referred us the a parinate that delivers. We have that appt for next week.
Today there isnt any new news. We have a great chance of making it to term. We have a chance to hold her in our arms warm and alive. Dr. S offerred any help he could and advice and answers to questions in the future.
Really nothing new other than some encouragement and compassion.
6/17/2005 1:06:31 AM
New Dr. Appointments
We have an appointments. With the perinatal doc on the 19th in the morning. This is the doctor with the level II ultra sound. We should be able to see more about the baby and find out how she is progressing.
We are hoping that we dont hear that Kennedy is falling farther behind. Last time we were in there we were told she was 2 weeks behind in development.
We are hoping this time we are told she is still 2 weeks (or less) in development.
Then we meet with our delivery doctor on the 23rd just to talk over some more information and talk about how things might go. Each day goes by we get closer to our time. Her heart beet is up to over 150 BPM so I think that is a good sign.
6/14/2005 12:34:53 AM
6/13/2005 12:00:00 AM
Today we talked...
Today Carol and I talked about how it was to just continue on as if everything were normal. I have been golfing at lunch and she has been hoping that baby is fine. For the most part you wouldnt notice that anything were wrong with the family - and really nothing is.
We talked about how there is a chance that Kennedy will come up just normal. I said out-loud (it is important to note what is out-loud and what is not) that Kennedy could come out and have a few surgeries and then live a life in a wheelchair or with special needs that we can certainly provide. Carol added that we could certainly handle that and could only pray for something as precious.
We found Kristin a new bed which meant that there was no longer room in her room for the cradle she had insisted we set up for Kenndy (how she says it). It had to go into Mommys room. We can pray and dream and truthfully it almost makes me tear that our child will come home and get to spend some time in that special cradle made by her grandpa - Charles Head.
Earlier we had talked about this website and Carol had mentioned how she thought in the beginning, when we first found out that Kennedy was T18, that this website might not be a great idea. She said that she has since come around and likes the idea and actual appreciates the fact that we will have what few parents get. The chance to remember Kennedy as much as we can.
I know some of you that will read this will be thinking that it would have been better to end it or easier or whatever. Well Kennedy is kicking and mocing around. Yeah we hear the heartbeat, but she is alive in there. We have made our decision and we are happy with it. Here is the end result - baby - heartbeat, pulse, brain (which is developing normaly of course), hands, feet, she is a girl, eyes, a smile when she comes out, ok really a crying upset child when she comes out, a live HUBER.
Those of you that know me either have heard HUBERSTYLE or perhaps TEAM HUBER. Kristin is even protective of the status of TEAM HUBER. Pa has been inducted. Grandpa is soon to be. Mommy is out. Grandma is in for the moment I think. Grandma Jo-Jo is in by default (last name is Huber). I mean Being a HUBER is something we have taken to a new level. Kennedy is automatically part of TEAM HUBER right now. Mark my words she is part of the team. A child of a team member not only sweats HUBER STYLE but they are part of TEAM HUBER for life.
Kennedy is and will remain part of the family as much today as she will be 10 years from now. TEAM HUBER!!
6/10/2005 1:48:24 AM
6/9/2005 12:00:00 AM
So I uploaded 3 new sounds today. The first, or earliest is the least clear although you can hear her talking about 20 seconds into it? Hear it?
The second is rather clear and you can hear the trotting noise you should hear. Sounds like a horse at gallop.
The third or top most audio file is of mommy's heart. You can clearly tell that it beats only half as many times per minute as Kennedy's heart.
After all I was speacially trained to use the doppler thingy... It is the easiest device to use and I suggest it to anyone who has the patience and interest.
Carol is doing well and really needs to hear how everyone asks how she is doing. She is near the point where she will start talking to friends and family about Kennedy without to much trouble.
The most interesting thing is when people ask "is there any danger to Carol?". I am impressed by this question because it really does look past the immediate situation and look at Carol as a person that needs care.
The answer for those of you wondering but have yet to ask is: No. There is no more danger to Carol at this point than in a regular pregnancy. If that changes then our decisions might change. But at this point there is no reason that Carol should be in danger. In addition we should have some warning signs before it gets to that point. Without going into detail - Carol will know if attention is needed far in advance in most cases.
Thanks for your prayers and so far we still have a lot to look forward to!
6/6/2005 2:10:18 AM
6/6/2005 12:00:00 AM
6/6/2005 12:00:00 AM
6/6/2005 12:00:00 AM
Well sometimes no news is good news
I have updated the site to provide links more like http://www.kidbabble.com
So far nothing new with Kennedy. She is still growing and we are listening to the heart as often as we can. It does seem to be getting stronger, but as she moves around more it is harder to find.
Carol is doing well and we are both hanging in there.
6/5/2005 1:42:32 PM
6/4/2005 12:00:00 AM
6/3/2005 12:00:00 AM
Today has been better.
Today has been better. Nothing really new to report.
Carol was able to sleep the entire night and today she has taken it easy. Jason has conitnued his planning and I have found the following article which is the best that I have read (and I have read many so far):
We can only pray that Kennedy is as well off as this child in the following photo (explicit but not inappropriate):
Please don't look at any other photos of children with T18. Just don't bother. I will post plenty of photos of Kennedy when she is born and I will take descretion in doing so. Some of the photos I have seen on the web are not only disturbing but inappropriate for our situation.
6/2/2005 8:46:18 PM
"Not so much" is good news?
First everything seems to be ok.
Tonight Carol called me at DeVry to tell me that she was "spotting". This isn't good news.
There are some pains that came along with it and so we are a little concerned. Carol had spent the morning cleaning and getting ready for the bug guy. We used to use Glendale Exterminating, but the owner turns out to be rather rude and careless not to mention inconsiderate to her customers.
Anyway about 8PM Carol called and gave me the news. I was walking out so I hurried home. We listened to Kennedy's heart and all was ok. 140 BPM and seeming strong.
We don’t know the cause, but we are praying that it isn’t anything unusual.
Carol has since went to check several more times and "not so much" was the last response I received. So we think everything might be ok. We are waiting the night to see. Carol has had a few more hours sleep during the day. Tonight sleep will be plentiful.
6/2/2005 1:05:01 AM
5/31/2005 12:00:00 AM
5/29/2005 12:00:00 AM
5/29/2005 12:00:00 AM
5/27/2005 12:00:00 AM